Hoss' Surgery and Recovery

Monday, July 19, 2010

Bumped for Surgery; NEW Surgery Date

Well, I got a call this last Friday afternoon (July 16th) from the neurosurgeon's office and they had to reschedule the surgery for the 25th of August because the cranio surgeon had a conflict in his schedule.  I am not particulary thrilled about that but there isn't much I can do about it. 

Surgery will begin at 8am and Hoss will get checked in at 6am at Mary Bridge, surgery should last until around noon and he will be in the pediatric ICU (PICU) and should move to the main floor the next day for 3-4 more days.

The next decision I have coming up is about blood donation for Hoss.  Since he will most likely need a blood transfusion Grant and I wanted to donate blood for him.  Apparently there is a risk for blood relative donation called Graft vs Host disease which is rare but also deadly, oh joy!  I am going in for some more information on this topic and to learn about the other risks that go along with blood transfusion.  If you know about this stuff or have an opinion, please leave a comment or email me.  There is risks either way blood bank or blood relative and the botttom line is that we trust that God is protecting this little guy.  If we donate it will be two weeks prior to surgery and of course insurance doesn't cover it.  How backwards is that?  There is always a need of blood donations and yet they want to charge you to give your own blood for someone close to you!

We will see Dr. Eheret the cranio/plastic surgeon this Wednesday, I think he wants to look at the scans and talk about surgery.  We haven't seen him since we first took him into be evaluated.  I will update that evening.

Thank you for your thoughts and prayers, I know they are working.  I have been fairly calm, or more calm through this journey.  My breakdowns are rare and I know Hoss is in good hands.  I am definately concerned about this blood donation risk right now and worried about how well Hoss's pain will be managed after surgery.  He is so precious and even though he won't remember this I just don't want him to be in pain! Thanks for keeping us in your prayers!